Thank you!


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What a touching moment for us here at #PurpleOurWorld to see Robbie Farah and Benji Marshall lead their teams onto the field proudly wearing their #PurpleOurWorld socks.

It’s been an emotional couple of weeks for us, as we’ve witnessed our dream come to fruition, and nothing made us prouder than seeing the teams wearing the socks in front of more than 17,000 people at the ground and many more watching at home.

Last Thursday, as we stood side-by-side with the boys and spoke to the media about why we’re doing what we’re doing, we know our loved ones were standing right there next to us, along with everyone else who has lost their fight to pancreatic cancer.

To hear Robbie talk about his mother and Benji open up about his father almost brought us all to tears. Together, we were finally putting pancreatic cancer on the map.

In the 24 hours following, we sat glued to our television and computer screens as the story made national headlines.

On game day, we stood outside ANZ Stadium and watched as people passed us by in their splashes of purple and as our Twitter feed exploded with support. We listened as the ground announcers spoke of our cause with our logo up on the big screen.

And then we watched two friends, who’ve been through so much together, including the loss of a parent, battle it out on the field.
And boy was it a match to remember.

Thank you to everyone who made this possible.

To Robbie, Benji and both your families, your stories have already inspired others to come forward. Thank you for being so open and honest. We hope we can continue to work together to bring awareness to a disease that has touched us all so deeply.

To the Wests Tigers and St George Illawarra Dragons, thank you for agreeing to support Robbie, Benji and us. Thank you for sharing our message with your supporters.

Thank you to the Fox Sports NRL boys for wearing purple ties in support of the cause and for making sure everyone at home knew why the boys were wearing #PurpleOurWorld socks.

To the team at ANZ Stadium, thank you for having us, and all the support you provided in the lead-up to the game and on game day.

To our family and friends, your unwavering support has been incredible. We thank you from the bottom of our hearts for your continual encouragement, help and love.

And finally, to our supporters – thank you for coming on the journey with us.

You know you’re making a difference when a random person sees you wearing purple tops at a restaurant, turns to you and says, “pancreatic cancer? Well done.”

We can’t wait to share what’s ahead.

Media release: #PurpleOurWorld socks for pancreatic cancer


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The St George Illawarra Dragons and Wests Tigers will be wearing #PurpleOurWorld socks to raise awareness for pancreatic cancer when they clash at ANZ Stadium, Olympic Park on Saturday, September 5.

The St George Illawarra Dragons have been personally affected by pancreatic cancer with halfback Benji Marshall losing his father at an early age.

Additionally, in July 2012, captain of the Wests Tigers Robbie Farah sadly lost his mother after she battled the disease for less than a year.

Until high profile people such as Patrick Swayze, Steve Jobs, Ian Ross and Peter Harvey were diagnosed with pancreatic cancer, awareness surrounding this silent killer was minimal.

Yet, in 2015, 3030 cases of pancreatic cancer have already been diagnosed in Australia. It’s projected that 2710 people will not survive.[1]

Statistics:

  • Around the world 330,372 people will die from pancreatic cancer each year.
  • Only 6% of patients live beyond five years after diagnosis. This number has only slightly improved over the past 40 years.
  • Pancreatic cancer is currently the fourth leading cause of cancer deaths in Western societies. Within the next 10 years, it is projected to be the second highest.[2]
  • The average survival is just six months.

#PurpleOurWorld, together with the Wests Tigers and St George Illawarra Dragons are hoping to change these statistics.

If you’re heading to the game, pop on some purple and help us spread the word.

Key dates:

  • November – Pancreatic Cancer Awareness Month
  • 13 November – World Pancreatic Cancer Day

For all media enquires please contact:
Jessica Abelsohn
E: info@purpleourworld.com
Ph: 0417 062 543

[1] Cancer Australia, canceraustralia.gov.au

[2] Garvan Research Foundation, Breakthroughs in Pancreatic Cancer

 

A bit more about #PurpleOurWorld

In August 2014, we lost a very special person. Wife, mother, nana, daughter, sister, aunt, niece, cousin and very dear friend, Rochelle Goulburn.

Rochelle defied most medical odds and fought against the disease for 16 months.

Around the time of diagnosis and throughout the past three years, we found that there was very little awareness (or funding) for pancreatic cancer.

So we decided to do something about it.

For the first World Pancreatic Cancer Day we asked everyone we could to pop on something purple and share a picture on social media using the hashtag #PurpleOurWorld.

We estimate that the number of people who took part reached about 2000 around the world. We’re hoping for more this year.

Chris Bath, Damian Ryan, Mark Ferguson and Samantha Brett shared our initiative on Twitter as did Fitzy & Wippa. Paul Murray got on board, sharing on Twitter and Facebook and wearing a purple tie on his Sky News show, Paul Murray Live. From Fox Sports, FoxCricketLive, Mark Bosnich, Tom Chadwick and Adam Peacock tweeted to their followers as did Wests Tigers Captain, Robbie Farah.

We reached New York, Chicago and Charlottesville in the US, South Africa, Singapore, London, Israel, Paris and Bali. In Australia, #PurpleOurWorld stretched to Dubbo, Armidale, Perth, Melbourne, Sydney, Gold Coast and Newcastle, among other cities.

Since then, Wests Tigers captain, NSW Hooker and Australian representative player Robbie Farah, as well as media personality Tracey Spicer, who also lost her mother to the disease, have come on board as ambassadors. We have also partnered with the Avner Nahmani Pancreatic Cancer Foundation and GI Cancer Institute as charity partners and we’re working with several other organisations to further the pancreatic cancer cause.

Website: www.purpleourworld.com
Twitter: @PurpleOurWorld
Facebook: Purple Our World
Instagram: Purple Our World

 

 

 

 

 

#PurpleOurWorld socks for pancreatic cancer


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When we first started #PurpleOurWorld nine months ago, we had some pretty big dreams. And we mean it when we say big. We’re talking ‘take over the world’ big.

We wrote them down on our business plan, never imagining that some would actually happen in our first year.

Well, we’re ecstatic to tell you that a couple of them have and we still pinch ourselves every day when we think about it.

Not only have we managed to get two wonderful ambassadors on board in Tracey Spicer and Robbie Farah. Not only have we managed to get incredible strategic partners in the GI Cancer Institute and Avner Nahmani Pancreatic Cancer Foundation.

But, and here’s the kicker, we’ve also managed to tick off one of our huge goals – ‘get a sports team to wear purple for one round’.

Yep, you read that right.

We’re extremely excited to announce that the Wests Tigers and St George Illawarra Dragons will be wearing #PurpleOurWorld socks for their final round clash on Saturday, 5 September.

The St George Illawarra Dragons have been personally affected by pancreatic cancer with halfback Benji Marshall losing his father at an early age. And the Wests Tigers family were deeply affected when Robbie lost his mother in 2012.

Both teams have been exceptionally supportive of the cause and we look forward to working with them.

If you want to help the initiative, head to the game (decked out in purple of course) and support pancreatic cancer awareness.

We know not all of you can make it so if you can’t come in person, make sure you’re watching it live to see all the action. And remember to upload your pictures to Facebook, Instagram and Twitter using the hashtag #PurpleOurWorld and tagging our pages.

We’ll have more to come on what’s happening around the match shortly but for now, we just couldn’t wait to share the news with you all!

Stay tuned.

Click here to purchase tickets

Letter to the surgeon


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A genuine letter sent to Mr Saxon Connor (Pancreatic Surgeon, Christchurch Public Hospital) in August 2013.

Dear Mr Saxon Connor

I am writing to thank you.

I am not sure about you (or any others for that matter) but the dusty eaves of my memory carry a bank of visual bites of moments I have captured. While I’d like to think the shelves would be full of beautiful vistas or those, oh-so-ever elusive Zen-moments, I have found instead that they tend rather to be stocked with life-altering flashes, both good and bad. Not so much the outcomes that sneak up on you but the ones that are so blatantly defining that when they are happening you know life is never going to be the same again.

I have a new moment and it contains you. You, a near stranger – and my beloved mum.

Elaine BerryWe had not met until the day I came to Outpatients with Elaine Berry. We met once again the following week but I doubt, because you will not be operating on her, that we will ever meet again.  Thus I am writing to tell you how grateful I feel. As an aside, we fully endorse your strong guidance not to operate. I once read that the operation with the best outcome can be the one a surgeon decides not to do. Independence matters and your encouragement to leave my mother with hers at a time when the things she actually has left are diminishing, is appreciated.

There is another reason I am writing. I imagine you know that you make a significant difference through the art and science of surgery. You heal. And I guess there are quite tangible times that illustrate this function of your action. As I write this I ponder whether that moment is when you take your scrubs off after a successful operation, or is it when you wave farewell to a discharged patient or at some other point, perhaps when you have sliced a rogue growth into submission. Or not. I don’t profess to understand the multiplicity of healing others. In this instance, with my mother, you did not hold a scalpel but you did make a big difference. Perhaps people have not stopped to tell you about this scalpel-esque skill you possess because, if like me, once they receive the information that death is near there is so much to digest and be getting on with, looking forward and looking back, but not reflecting on the moment of actual realisation. (The time granted becomes something to make the most of – how does one live up to that?).

Perhaps I would not have written this if I had not taken time off work (allowing the clip to replay in the silence, attendant to pausing) due to this merciless strep throat that refuses to heal, its red fury unquestionably encompassing the anger I hold (just now) at the world and My Maker for planning to seize my mother.

My mother and I both dislike germs (ick), hospitals (ick), medical centres (ick), and especially germs in hospitals and medical centres (ick). Other than that I would have loved a career in medicine! My visual memory bites of Christchurch Hospital consist of being left in a small, windowless ‘viewing’ room with dirty salmon-coloured walls, faded plastic flowers and a dead family member, alarmingly cold and tucked between crisp white sheets. Wrestling with the angst of not wanting to be there to witness the person changed in death coupled with a reluctance to leave, knowing they will be wheeled back to the morgue fridge alone. It was deep in the darkness of night in that aesthetically stomach-churning room when I viewed both my grandmother and years later my father. I’ve imagined my mother’s earlier experience of being in that same room (also in the hours of darkness); the tale she shared with me about embracing her unrecognisable son Christopher who died suddenly and staggeringly of cot death before I was born. (Do I remember that story right? I must check with her before it is too late. There are so many stories to capture).

Prior to our visit with you there had been a flurry of medical appointments (more ick, my standard germ-phobic phrase when dropping my mother at the hospital doors before heading off to find a park became “Don’t lick the lift buttons!”). Cloudy moments of waiting rooms and waiting. Waiting for appointments. (Why do I bother to turn up to a medical appointment on time?) Waiting for results. Waiting a week for the next appointment to roll around. Waiting for answers. We found ourselves powerless on one of life’s conveyor belts. Little did we know yours was the grand finale of appointments on that grey wintery Christchurch day? We had begrudgingly seated ourselves among (coughing, limping, frowning) people in the waiting room, holding the little concrete information her doctor had given us and a few clues about what you were going to say to us. Sitting beside a person from the generation that doesn’t talk their worries to death, or unnecessarily about death but instead just pulls their socks up and get on with life, I inwardly hoped (maybe we both did) that you would operate and find the growths were not, luck upon luck, cancer. Hurray, we could all live happily ever after!

But, it was not to be …

However with your scalpel in your back pocket but hands still connected to heart, you healed us both in some way that day. It was your unfortunate duty to tell my mother that she has 9-12 months to live. I was blindsided by the news. I physically recoiled. I bit my lip as hard as I could, an old trusty trick to stop me crying. Those damn tears wouldn’t obey, drowning my eyes. You became blurry because I daren’t move to dry them. I didn’t want my mother to see my pain, for she wasn’t crying and I had no right to let her team down. You leaned forward and looked into what I imagine was my mother’s startled soul and were there. My clumsy simplistic words will never capture your message but the essence seemed to say ‘it is going to be okay, you’re going to be okay even though your time is near, worry yourself not’.

Your manner and your words gifted a safety net and right then and there it stopped us from dropping into a chasm. You didn’t rush us despite nightfall descending outside or push back against the emotion in the room we were choking on, but sat with it and supported us as the information sunk in. You were generous with your time and tried to find the other surgeon to talk about that other cancerous growth not as nasty or angry as the one on her pancreas. You followed my mother’s lead, her signature mark humour, and kidded that the kidney surgeon had left for the day because he was either more efficient or preferably more lax than you. The joking continued and laughter melted the fear. We put a plan together and I have no doubt you helped us crawl out of the momentary despair we both found ourselves in. You safely walked us out from shellshock to new spaces to where we needed to be to tell our loving family and march forward.

It is funny what else takes place in one’s mind at a moment like that. I suddenly realised the woman who entered the room with you (who I thought was a trainee doctor) was actually a cancer nurse.  Up until you told us it was most certainly cancer, I had not noticed the c-word stamped on her name badge, and her lanyard and her face. CANCER. CANCER. CANCER.  Gulp, gulp, gulp. In the car on the way home my mother told me that at that same time I was working that out, she was reading the label on the chest of your scrubs. Despite it saying CH-CH Hospital Outpatients, the fabric fell and folded in a way that the letters seemed to read, ‘OH-OH Hospital Outpatients’. ‘Oh, Oh, alright!’ she remarked. We laughed and it became a family story.

When I was a teen my grandmother underwent a huge operation. Until the day she died she had a photo of the surgeon in a frame. A stranger to us yet his picture took pride of place. With things still to be done before she could go I think she was saying to her saviour, ‘I owe you the sight of the morning’. Even though you couldn’t offer an extended life to my mother, my interpretation is that you supported her inner strength to come to the fore enabling us to see that her last days can be filled with sincerity, connection and humour. It is almost like you helped build a splendid framework for how we could bravely go forward into our respectively altered lives – the new lives which started from that exact moment of time, before we stepped out of Christchurch Hospital’s doors and into winter’s dusk.

My ever-resilient mother has a goal. She wants to outlive the timeframe you have given her (nothing personal!). It is about looking death in the face and not flinching. It is about being positive when it would be easy to be otherwise. It is about stepping up when she has every reason not to. And she is content in the knowledge that when her time comes she will embrace her husband, son, parents and others dear to her whom have already departed. And maybe, with my splendid new framework, I won’t feel resigned to leave her behind at OH-OH Hospital. Instead, I will carry her out into the rose-pink light of dawn wrapped in a beautiful, lush blanket, (figuratively speaking that is – no need to warn security).

So thank you Mr Saxon Connor. I am extremely grateful to you. I envy your grace and compassion. I am in awe of the responsible tasks you undertake in a regular working day at the coalface of life and death. Suddenly my own semi-responsible job looks like child’s play. You took an unbearable situation and made it not only palatable but also meaningful. I hope to be better from the privilege of watching you in action, fully present with us and the emotion of the moment, in that moment.

Surgeons put things right, and even now, I feel that writing this to you has assisted in healing me.  Thank you for helping me to piece the bits together.

Indebted,

Janine Harrington

Elaine Berry died at home with family without a single night (alive or dead) at CH CH Hospital.

Surviving pancreatic cancer


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Jan Mumford LowResJan Mumford was diagnosed with pancreatic cancer aged just 36.

She had three small children – four, two and three months – and a long and happy future ahead of her. “Being diagnosed with cancer was a terrible shock because I was otherwise so well,” Jan says.

The truth is, while pancreatic cancer is more common in males and those over the age of 60, it is not discriminatory and it can strike at any time.

For Jan and her family, the only way to cope was to do only what was important. “If things were not important – like washing the floor – they didn’t get done.” Without much family close by, the family got on as best they could.

“Everybody says that when you hear those words that you have cancer that your life stops. And it does,” Jan explains. “Your life stops and that future that you had envisaged before you, in very small detail sometimes, is just gone. You have lost that future that you thought you were going to live.”

It’s important to remember that cancer doesn’t just affect the patient. It has a huge impact on the patient’s family as well. “Over the years I’ve met many other people who have had pancreatic cancer and I’ve seen how this disease has impacted on them and their families,” Jan says. “Many don’t survive and I feel very fortunate to be well now.”

From the time she was diagnosed, Jan wanted to find out about developments in pancreatic cancer research.

Jan is now involved with our strategic partner the GI Cancer Institute, through her participation in the Australasian Gastro-Intestinal Trials Group (AGITG) Consumer Advisory Panel. She joined because she wanted to find out more about new treatments for pancreatic cancer. “I wanted to learn about the changes that were happening, and I wanted to be able to give back to the people who I know, who I speak to, who have had a diagnosis of cancer.”

Find out more about the GI Cancer Institute Clinical Trials

What a start!


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It’s coming up to seven months since we lost Rochelle and while it definitely still feels raw at times, as we believe it always will, we’ve been very busy working behind the scenes to get our new initiative off the ground.

When the idea first sprung, we were planning on a small, intimate, ‘wear purple for pancreatic cancer day’ with our friends and work colleagues. We never imagined it would become what it is shaping up to be.

But go hard or go home right?

Over the past couple of months, we have been in meetings with some lovely, warm and compassionate people who have either experienced pancreatic cancer first-hand with their own loved one, or work in the field.

Tracey Spicer lost her mother 15 years ago. Robbie Farah lost his mum just two years ago. Despite the long stretch of time between the losses, there was no change in diagnosis methods, treatment or survival rates. #PurpleOurWorld is about raising awareness to change these statistics – something that is close to both Tracey and Robbie’s hearts. We’ll be updating the website with their stories shortly.

Their support will lead to huge things. In fact, it already has!

We are in talks with charities to partner with so if and when our supporters ask where to donate, we can point you in the right direction. As soon as these are secured, you’ll be the first to know!

We are hoping to shortly approach other organisations and media representatives to help our cause.

In the meantime, if you’d love to help us, we’d love to have you! Get in touch.